New radio documentary miniseries “Hoarders”!

The new radio documentary miniseries “Hoarders” is now available on Swedish Radio P1. Hoarders is a three-part docuseries following people suffering from hoarding-related problems, exploring available remedies and support, and including the perspective of close relatives to hoarders. Volen Ivanov is featured in the documentary to lend his perspective on hoarding and provides information on effective types of treatment. 

In connection with the release of the first episode, Volen Ivanov was also featured alongside documentary director David Ohlsson, and Hanna Danmo in Studio One to give more information on the documentary miniseries as well as provide more insight into the problem both from the clinical and practical perspective, which can be listened to here.

Hoarding disorder is still relatively understudied, and it is believed that as many as 2,5 % of the population suffers from it. It is promising that hoarding has been spotlighted over the past couple of months, including in the SVT documentary Samlarna, released earlier this year. We are still actively recruiting for our study, testing a new treatment for patients with hoarding disorder. Read more about the study, and about how to apply, here.

All three episodes are available on Swedish public radio (Sveriges radio) and can be accessed by clicking the links below. All episodes are in Swedish. 

Volen och Sofia i SVT’s Samlarna

The documentary Samlarna is now up on SVT Play. Samlarna is a film by Linnea Widén about hoarding disorder, portraying people with problematic hoarding behavior. Volen and Sofia are participating in the film, in a task force meeting where different partakers working with hoarding disorder meet and work together.

Hoarding disorder is still a relatively unknown disorder, especially considering that as many as 2,5 % of the population is believed to suffer from it. The film include portraits of people living with this condition. We believe that this documentary play a role in increasing knowledge about the disorder and the patiens struggling with it.

We are currently conducting a study testing a new treatment for patients with hoarding disorder. The new treatment consists of a combination of CBT and home de-cluttering. We compare the treatment with CBT only. Read more about the study here.

The documentary is already up on SVT Play, and broadcasted on SVT1 on Thursday, January 19th.

Science, Samba & Soccer: our visit to São Paulo in August 2022

Last week, Oskar Flygare, Volen Ivanov and Christian Rück visited our collaborators in São Paulo, Brazil to work on current projects and discuss new ones. This was the third meeting in person between the two collaborating groups, the previous ones being Alice de Mathis’ visit to Stockholm and a visit by Oskar and Christian to São Paulo in 2019. The OCD research group at São Paulo is led by professor Euripedes Constantino Miguel and our visits always involve a rich exchange of ideas relating to our research.

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One ongoing research project is a pilot study of an internet-delivered treatment for obsessive-compulsive disorder (OCD-NET) which has been translated to Portuguese and is now being evaluated in Brazil. After a brief suspension due to the pandemic, the project is now well underway with ongoing recruitment and treatment of patients. So far the feedback from both therapists and patients has been encouraging. In addition to discussing the ongoing project, Oskar presented results and lessons learned from two recent clinical trials on OCD-NET in Sweden and England.

Volen shared his knowledge about hoarding disorder, from research projects and clinical work. Expertise in diagnosing and treating hoarding disorder is sorely lacking in Brazil, and our colleagues were eager to learn as much as possible in order to provide effective care. Interestingly, just months before our visit a podcast about an individual with likely hoarding disorder in São Paulo has stoked public interest and increased awareness about the condition. It is clear that our research groups have plenty of opportunities for collaboration on projects related to hoarding.

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The visit was also an opportunity to plan an upcoming project led by Arthur Caye that will evaluate internet-delivered treatments for OCD, depression, insomnia and anxiety in two municipalities outside of São Paulo: Jaguariúna and Indaiatuba. The access to psychotherapy in these cities is limited and the project is an opportunity to increase access to effective treatments for common disorders. The project will evaluate the feasibility of using internet-delivered treatments in primary care, where most of the patients with mental disorders are seen.

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We were once again moved by the hospitality and warmth our hosts showed us. There was a rich social programme outside the work activities and we had the opportunity to enjoy samba with Daniel Costa, soccer with Rodolfo Furlan Damiano and several restaurants together with our Brazilian colleagues Nil Morales, Sonia Borcato and Roseli Shavitt. Thanks to their generosity with their time, we got a true taste of Brazilian culture!

Sofia Jägholm talks about hoarding on TV4 Nyhetsmorgon

Sofia Jägholm participated in TV4 Nyhetsmorgon, Swedish morning news and talk show, and talked about the on-going recruitment to the Joining Forces randomized controlled trial.

The study aims to determine the clinical efficacy of in-home decluttering (delivered by a team from a social service unit) augmentation of group CBT for reducing hoarding severity in adults with hoarding disorder. 

Participants will receive protocol-driven group CBT for HD for 12 weeks. After group CBT, participants are immediately randomized to one of two trial arms. In the experimental arm, participants receive 10 weeks of in-home decluttering. In the waitlist arm, participants receive no intervention but fill out questionnaires with identical procedures as in the intervention group. 

Hoarding disorder is a mental disorder on the OCD-spectrum. It is characterized by significant difficulties of discarding or parting with possessions and strong urges to save and often also strong desires to acquire items. Together, these symptoms result in the accumulation of large amounts of items that are kept in a disorganized manner at home, to the degree that normal use of the space is difficult, causing significant impairment in function. 

Click here to watch the clip online at tv4play (in Swedish).

Är du intresserad av att delta i studien och bor i Stockholms kommun? Läs vidare och anmäl intresse här.

Enkätstudie om problematiskt samlarbeteende under coronapandemin

Har du svårt att göra dig av med saker? Har det påverkats av coronapandemin?

Om du upplever att ditt samlande skapar problem för dig hoppas vi att du vill vara med i vår studie och hjälpa oss fylla i en anonym webbenkät:

https://redcap.link/problematisktsamlande

Vi söker deltagare till en enkätstudie med syfte att undersöka coronapandemins påverkan på personer som har problem med samlande. Samlande kan bland annat bero på samlarsyndrom, vilket kännetecknas av att den drabbade har så stora svårigheter att slänga saker att hemmet blir belamrat och inte kan användas (helt eller delvis). Tillståndet kan leda till flera negativa konsekvenser både på individ- och samhällsnivå.

Eftersom vi inte kan diagnosticera deltagarna via internet använder vi formuleringen problematiskt samlarbeteende i stället för samlarsyndrom. 

Tryck här för att komma till enkäten.

English translation: We are looking for participants to a survey (in Swedish) about problematic hoarding behavior. Hoarding syndrome is characterized by difficulties discarding possessions which leads to cluttering in the home and ultimately to negative consequences on both the individual and the societal level.

Rück Lab in California

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Volen is in California this week, meeting with professionals involved in hoarding task forces and treatment of Hoarding Disorder in and around San Francisco. Below are two members of the relatively new task force in Santa Clara, Dana Girard and Mallory von Kugelgen. A fruitful discussion which led to new ideas about what a Swedish task force could focus on.

It is obvious that there is a lot to be done for people with Hoarding Disorder in Sweden, and that collaboration across organizations is key, More updates from the trip to come.

 

On track: Volen Ivanov passed his half-time seminar

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Volen with the examination board: Bo Melin, Jerker Hetta and Karin Wirdefeldt

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Zooming in on Volen.

Volen passed his half-way checkpoint to his PhD today. We wish to thank the examination board and the co-supervisors Eva Serlachius, David Mataix-Cols and Paul Lichtenstein.

Next up in our group for his half-time seminar is Jesper Enander: January 16th, 13h00 at Askö, M57, Huddinge. Welcome.

Half-time seminar for Volen Ivanov

Welcome to Volen Ivanov’s half-time seminar for his PhD plan “Never let go! The etiology, clinical presentation and treatment of Hoarding Disorder”.

When: December 8, 13H00.

Where: Askö, M57, Karolinska University Hospital Huddinge.

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Volen Ivanov

Meet us at the APA meeting in New York

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Several team members will present at the upcoming APA meeting:

 

Saturday May 3, 3:30 P.M. – 5:00 P.M.

Room 1E11, Level 1. Jacob K. Javits Convention Center

Internet-Delivered Cognitive Behavior Therapy for Body Dysmorphic Disorder: A Pilot Study

Jesper Enander, M.Sc.

 

Sunday May 4, 12:30 P.M. – 2:00 P.M.

Room 1E11, Level 1

Hoarding Disorder in Adolescence: Phenomenology and Clinical Correlates

Volen Z. Ivanov, M.Sc.

 

Tuesday May 6, 2:30 P.m. – 4:00 P.m.

New Research Poster Session 2, Halls 3A/3B, Level 3

Poster: NR8-26: Acceptance-Based CBT for Body Dysmorphic Disorder: A Pilot Study

Johanna Linde, M.Sc.